Supporting Asperger Families in Essex
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One in seventy people have some form of autistic spectrum disorder (ASD) so chances are you will come across people with ASD in your working life. People with ASD look the same as everyone else so it can be difficult to recognise and it is much harder to understand the disability. Autism and Asperger syndrome are much more common than cerebral palsy or downs syndrome and yet the needs of people with this profound social disability remain largely unmet.
Supporting Asperger Families in Essex (SAFE) work to raise awareness of the needs of people and families with Asperger’s syndrome. Between us we have amassed a great deal of knowledge and experience of living and coping with Asperger syndrome and we are very keen that as many people as possible gain a greater understanding of it. We welcome professional members of SAFE and we are willing to come along to your place of work to talk about how you can improve your services for people with Aspergers Syndrome and their families.
Below you can find more information for:
The National Autistic Society has had great success with its “Make Schools Make Sense” campaign. They have put together a fantastic teachers awareness pack and have lots of information and tools to help teachers in the classroom environment, which can be downloaded from their website.
What can be done by Teachers & Learning Support Assistants?
The first thing to be aware of when dealing with patients with Aspergers Syndrome (AS) is that they tend to have very high pain thresholds and often behave in unusual ways when they are in pain. People with Aspergers Syndrome have difficulty recognising and understanding their own feelings (let alone anyone elses) and they may not recognise that the sensation they are experiencing is pain. This does not mean they are not in pain. Just that they have trouble recognising it. It is quite possible for an AS individual with a broken bone to not complain of pain so you need to make sure that every individual with AS is checked thoroughly.
People with AS find crowds very stressful, they may not give you eye contact and they may not look as if they are listening to you. People with AS usually have normal or above normal intelligence but they often have trouble processing verbal information especially when stressed so it is wise to reinforce what you are saying by writing information down and/or using pictures.
The National Autistic Society website has an excellent resource of information for health professionals dealing with patients with Aspergers Syndrome which you can download for free.
People with Aspergers Syndrome tend to live ‘by the rules’ this means that they are usually less likely to come into contact with the Criminal Justice System as a perpetrator. However their very great difficulty in understanding and participating in social situations means that they are more likely to become the victim of crime.
Many of our adolescent members have had prolonged difficulties following quite innocent interactions with the police and so it is vital that all members of the criminal justice system are aware of the needs and difficulties associated with Aspergers Syndrome.
The National Autistic Society has an excellent series of resources to help Criminal Justice Professionals who come into contact with people with Aspergers Syndrome. Many people (but not all) with Aspergers Syndrome carry an Autism Alert Card on their person which should alert you to their needs.
Please email us if you would like to know more, to arrange a training session, join us, or make contact with your local SAFE group.