Supporting Asperger Families in Essex
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09 October 2007
You are invited to participate in some research on the health of parents raising a child with a disability. The purpose of this study is to gain a deeper insight into the lives of parents raising a child with a disability. The current research seeks to better understand the variations in parental responses to raising a child with a disability. The research seeks to examine not only how parents cope with raising their child (which presumes that parents necessarily struggle to effectively manage their situations) but also how they flourish and grow.
Information from questionnaires like this will help other families who are trying to cope with the added difficulties that a child with a disability gives rise to. This information will also help professional counsellors and psychologists working with parents who are experiencing problems in these areas.
If you agree to participate, you will be asked to complete an online questionnaire, which includes some questions where you rate the degree to which you agree or disagree to various statements. The topics covered in the questionnaire include your state of well being, help-seeking, coping processes and your spirituality. The questionnaire will take approximately 40 minutes to complete. You are requested to complete the same questionnaire approximately 6 months from now. Should you wish to complete the questionnaire at this time only, we would still be grateful for your support, and welcome your input.
Participation in this research is entirely voluntary. You are under no obligation to complete the questionnaire once you have started. At any time you may withdraw from completing or submitting the questionnaire. If some questions are too difficult, they may be skipped. While a completed questionnaire is of most benefit to the researcher, any information gained is beneficial.
The submission of your questionnaire implies that your consent is given for the researcher to use the information you have supplied. Please note, that this study may be published in a scholarly journal and any specific identifying information will be removed or changed (such as your child’s age or disability, etc.) Please remember that you are free to discontinue participation in the project at any time.
Any questions you may have regarding this project can be directed to either the researcher, Aaron Allen, or the supervisor, Prof. Barry Fallon of the School of Psychology (03) 9953 3205.
Link to the research questionnaire about the health of parents with disabled children
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